One-in-50-Million-still

One In 50 Million

Nawaal Akram is a fairy on wheels, a witty wise water sprite made to live in the desert. Diagnosed with Duchenne Muscular Distrophy, a rare chromosomal mutation in women ( only one in 50 million), she uses fashion, make-up, and stand-up comedy as a platform for her activism. Her gradually debilitating health does not seem to affect her energy and zest for life, but her body has already started to fail her. At 19, she’s conscious of her imminent destiny and lives more intensely than ever.
with Nawaal Akram
Written, Directed and Produced by Luciana Ceccatto Farah
Short Documentary. 15’04”
English with English subtitles